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The Patient Alliance for NeuroEndocrineImmune Disorders Organization for Research and Advocacy, Inc. is also referred to in this agreement as “P.A.N.D.O.R.A., Inc.” and “P.A.N.D.O.R.A.” and “PANDORA.” By using the pages in this site, you agree to these terms and conditions. If you do not agree, you should not use this site. These terms and conditions may be changed or updated from time to time.
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Restrictions on Use
Except as otherwise indicated elsewhere in this publication, with respect to a particular portion, file, or document, any person is hereby authorized to view, copy, print, and distribute this document subject to the following conditions:1. The document may be used for informational, non-commercial purposes only. 2. Any copy of the document or portion thereof must include the P.A.N.D.O.R.A., Inc. copyright notice as shown above. 3. P.A.N.D.O.R.A., Inc. reserves the right to revoke such authorization at any time, and any such use shall be discontinued immediately upon notice from P.A.N.D.O.R.A., Inc.
P.A.N.D.O.R.A., Inc. considers framing, the practice of intact reproduction of a page or pages of one website into another website, to be deceptive and a violation of P.A.N.D.O.R.A.’s copyright rights. No authorization or permission is given for framing our content, whether in whole or in part. The text, layouts, graphics, and logos at this site and those of any of the P.A.N.D.O.R.A.’s related, affiliated, or subsidiary units, including chapters and blood services regions, are protected by U.S. copyright, trademark, service mark or other proprietary rights and laws.
If you have any questions about P.A.N.D.O.R.A.’s intellectual property rights, you can contact us at:
PANDORA, Inc.
c/o Viña + Company
255 Alhambra Circle, Suite 715
Coral Gables, Florida 33134
Email Inquiries Here
Restrictions and Limitations of Liability
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P.A.N.D.O.R.A., Inc. or an authorized P.A.N.D.O.R.A., Inc. representative has been advised of the possibility of such damages, or both. Because some jurisdictions
do not allow the exclusion or limitation of incidental or consequential damages, P.A.N.D.O.R.A.’s liability in such jurisdictions shall be limited to the extent permitted by law. P.A.N.D.O.R.A.’s total liability to you for all losses, damages, and causes of action [in contract, tort (including without limitation, negligence), or otherwise] will not be greater than the amount you paid to access this site.
This site may be linked to other sites that are not maintained by P.A.N.D.O.R.A., Inc. P.A.N.D.O.R.A., Inc. is not responsible for the content of those sites. The inclusion of any link to such sites does not imply endorsement by P.A.N.D.O.R.A., Inc. of the sites. P.A.N.D.O.R.A., Inc. makes no representations whatsoever about any other website which you may access through this one.
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Disclaimer
The material in this site could include technical inaccuracies or typographical errors. P.A.N.D.O.R.A., Inc. may make changes or improvements at any time.
The Materials in this site are provided "AS IS" and without warranties of any kind either expressed or implied, to the fullest extent permissible pursuant to applicable law, P.A.N.D.O.R.A., Inc. disclaims all warranties or merchantability and fitness for a particular purpose. P.A.N.D.O.R.A., Inc. does not warrant that the functions contained in the material will be uninterrupted or error-free, that defects will be corrected, or that this site or the server that makes it available are free of viruses or other harmful components. P.A.N.D.O.R.A., Inc. does not warrant or make any representations regarding the use of or the result of the use of the material in this site in terms of their correctness, accuracy, reliability, or otherwise.
P.A.N.D.O.R.A., Inc. is an equal opportunity employer committed to a diverse work force. To be considered for a posted job opportunity, you must submit an application or resume.
This publication is distributed internationally and may contain references to P.A.N.D.O.R.A. services, products, and programs that are not in your country. These references do not imply that the P.A.N.D.O.R.A. intends to announce or provide the programs, products, or services in your country.
Termination
P.A.N.D.O.R.A. or you may terminate this agreement at any time. You may terminate this agreement by destroying: (a) all materials obtained from the P.A.N.D.O.R.A. sites, and (b) all related documentation and all copies and installations (together, the "Materials"). P.A.N.D.O.R.A., Inc. may terminate this agreement immediately without notice if, in its sole judgment, you breach any term or condition of this agreement. Upon termination, you must destroy all materials.
Miscellaneous
These Terms and Conditions will be governed and be interpreted pursuant to the laws of the State of Florida, United States of America, excluding its conflicts of law rules. You expressly agree that the exclusive jurisdiction for any claim or action arising out of or relating to these Terms and Conditions or your use of this site shall be filed only in the federal courts located in the State of Florida. If any part of these Terms and Conditions is unlawful, void, or unenforceable, that part will be deemed severable and will not affect the validity and enforceability of any remaining provisions. Possible evidence of use of this site for illegal purposes will be provided to law enforcement authorities. This is the entire agreement between the parties relating to the use of this site.
P.A.N.D.O.R.A., Inc. can revise these Terms and Conditions at any time by updating this posting.
Information on the P.A.N.D.O.R.A., Inc. website, or those of any of P.A.N.D.O.R.A.’s related and affiliated agencies or organizations, is provided with the understanding that P.A.N.D.O.R.A., Inc. is not rendering professional advice or recommendations. You should not rely on any information on these pages to replace consultations with qualified professionals to meet your individual needs.
Trademark Information
The P.A.N.D.O.R.A. and NEI Center logos are protected marks.
All other trademarks displayed on this site or through links to other sites are the property of the respective trademark owners.
| HEALTH CONDITIONS LIBRARY | ADVOCACY & AWARENESS |
CDC PETITION |
ABOUT THE NEI CENTER |
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PANDORA is strong on advocacy and awareness to improve the quality of life of those with NEI diseases. This is being accomplished through multiple approaches: • Educating the public about NEIDs • Educating physicians about the true nature of NEIDs • Advocating for state and national governments to increase research into NEIDs • Advocating for government health policies that will improve the quality of life of NEIDs patients. Read More > |
telling the CDC they need to make changes to their CFS research program. The CDC has already made some progress by meeting with patient organizations and working with other ME/CFS clinicians and researchers. They have started the process of refining the CFS diagnostic criteria. But much more is needed. They have a long way to go. |
The (NeuroEndocrineImmune) NEI Center will be the first research center of its kind. Patients will benefit from cutting-edge research and clinical care. It will have the computer-aided disease diagnosis and treatment (CADDT) system, which will be specifically designed for multi-system illnesses and complex diseases. Assistance in accessing social services will also be offered so that patients will feel better, live longer and have an improved quality of life. For more information, visit the NEI Center website. |
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