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    HEALTH CONDITIONS LIBRARY
    ADVOCACY & AWARENESS
    CDC PETITION
    ABOUT THE NEI CENTER

    $

    PANDORA is strong on advocacy and awareness to improve the quality of life of those with NEI diseases. This is being accomplished through multiple approaches:

    • Educating the public about 

      NEIDs

    • Educating physicians about

      the true nature of NEIDs

    • Advocating for state and

      national governments to

      increase research into NEIDs

    • Advocating for government

      health policies that will

      improve the quality of life of

      NEIDs patients. Read More >

    Please sign

    this petition

    telling the CDC they need

    to make changes to their CFS research program.

    The CDC has already

    made some progress by

    meeting with patient organizations and working

    with other ME/CFS

    clinicians and researchers.

    They have started the

    process of refining the CFS diagnostic criteria.

    But much more is needed.

    They have a long way to go.

    The (NeuroEndocrineImmune) NEI Center will be the first research center of its kind. Patients will benefit from cutting-edge research and clinical care. It will have the computer-aided disease diagnosis and treatment (CADDT) system, which will be specifically designed for multi-system illnesses and complex diseases.

    Assistance in accessing social services will also be offered so that patients will feel better, live longer and have an improved quality of life. For more information, visit the NEI Center website.

     
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