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Learn more about leading NEIDs

advocates and recipients of PANDORA's

Fueling Advocacy Citgo Fuel Cards

 
NEWS & MEDIA

 

 


HEALTH CONDITIONS LIBRARY
ADVOCACY & AWARENESS
CDC PETITION
ABOUT THE NEI CENTER

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PANDORA is strong on advocacy and awareness to improve the quality of life of those with NEI diseases. This is being accomplished through multiple approaches:

• Educating the public about 

  NEIDs

• Educating physicians about

  the true nature of NEIDs

• Advocating for state and

  national governments to

  increase research into NEIDs

• Advocating for government

  health policies that will

  improve the quality of life of

  NEIDs patients. Read More >

Please sign

this petition

telling the CDC they need

to make changes to their CFS research program.

The CDC has already

made some progress by

meeting with patient organizations and working

with other ME/CFS

clinicians and researchers.

They have started the

process of refining the CFS diagnostic criteria.

But much more is needed.

They have a long way to go.

The (NeuroEndocrineImmune) NEI Center will be the first research center of its kind. Patients will benefit from cutting-edge research and clinical care. It will have the computer-aided disease diagnosis and treatment (CADDT) system, which will be specifically designed for multi-system illnesses and complex diseases.

Assistance in accessing social services will also be offered so that patients will feel better, live longer and have an improved quality of life. For more information, visit the NEI Center website.

 
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