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NeuroEndocrineImmune diseases (NEIDs) take a dramatic toll on society, individuals and their family. Many patients can not find knowledgeable healthcare, face obstacles in accessing social services and do not have the physical and emotional strength to be their own advocates. An estimated 20 million Americans suffer from NEIDs.
The good news is that NEIDs are now recognized as deserving state and national attention. More good news is that scientific breakthroughs in recent years have brought greater understanding of the biological abnormalities that may explain the debilitating symptoms associated with NEIDs. Even better, PANDORA and other patient organizations are now working together to advocate for physician education, increased government-funded research and government policies that reflect the true nature of these diseases.
One Voice, as One Community, for One Cause
| HEALTH CONDITIONS LIBRARY | ADVOCACY & AWARENESS |
CDC PETITION |
ABOUT THE NEI CENTER |
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PANDORA is strong on advocacy and awareness to improve the quality of life of those with NEI diseases. This is being accomplished through multiple approaches: • Educating the public about NEIDs • Educating physicians about the true nature of NEIDs • Advocating for state and national governments to increase research into NEIDs • Advocating for government health policies that will improve the quality of life of NEIDs patients. Read More > |
telling the CDC they need to make changes to their CFS research program. The CDC has already made some progress by meeting with patient organizations and working with other ME/CFS clinicians and researchers. They have started the process of refining the CFS diagnostic criteria. But much more is needed. They have a long way to go. |
The (NeuroEndocrineImmune) NEI Center will be the first research center of its kind. Patients will benefit from cutting-edge research and clinical care. It will have the computer-aided disease diagnosis and treatment (CADDT) system, which will be specifically designed for multi-system illnesses and complex diseases. Assistance in accessing social services will also be offered so that patients will feel better, live longer and have an improved quality of life. For more information, visit the NEI Center website. |
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