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Learn more about leading NEIDs

advocates and recipients of PANDORA's

Fueling Advocacy Citgo Fuel Cards

 
What is Chemical Sensitivity?

People with chemical sensitivities

must take unusual steps to avoid inhaling

chemicals that are found all around us.

 

Chemical sensitivity / environmental illness is when a person’s body has a severe metabolic and neurological reaction to pollutants, chemicals or food additives that are common in our society. Air pollution, perfumes, gasoline, smoke and household cleaners are episode triggers. In severe cases, people with MCS/EI also may suffer from food intolerances.

This disease forces patients to make considerable changes in their living conditions, sometimes having to live in their car to avoid the household triggers. Also, patients often avoid social gatherings, hotels or business establishments to prevent the disabling symptoms. Of course, this disease has a big impact on a person’s ability to keep their employment.

The disease often develops in people with other NeuroEndocrineImmune diseases, such as ME/CFS and fibromyalgia.

What are the symptoms of CS/EI?

What if I have CS/EI?

Dr. Lisa Nagy's story

Economic Impact of CS/EI

 

    The information contained in these topics is not intended nor implied to be a substitute for professional medical advice, it is provided for educational purposes only. You assume full

    responsibility for how you choose to use this information. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment or

    discontinuing an existing treatment. Talk with your healthcare provider about any questions you may have regarding a medical condition. Nothing contained in these topics is intended

    to be used for medical diagnosis or treatment.


HEALTH CONDITIONS LIBRARY
ADVOCACY & AWARENESS
CDC PETITION
ABOUT THE NEI CENTER

$

PANDORA is strong on advocacy and awareness to improve the quality of life of those with NEI diseases. This is being accomplished through multiple approaches:

• Educating the public about 

  NEIDs

• Educating physicians about

  the true nature of NEIDs

• Advocating for state and

  national governments to

  increase research into NEIDs

• Advocating for government

  health policies that will

  improve the quality of life of

  NEIDs patients. Read More >

Please sign

this petition

telling the CDC they need

to make changes to their CFS research program.

The CDC has already

made some progress by

meeting with patient organizations and working

with other ME/CFS

clinicians and researchers.

They have started the

process of refining the CFS diagnostic criteria.

But much more is needed.

They have a long way to go.

The (NeuroEndocrineImmune) NEI Center will be the first research center of its kind. Patients will benefit from cutting-edge research and clinical care. It will have the computer-aided disease diagnosis and treatment (CADDT) system, which will be specifically designed for multi-system illnesses and complex diseases.

Assistance in accessing social services will also be offered so that patients will feel better, live longer and have an improved quality of life. For more information, visit the NEI Center website.

 
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