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Learn more about leading NEIDs

advocates and recipients of PANDORA's

Fueling Advocacy Citgo Fuel Cards

 
What is Chronic Lyme Disease?

The deer tick, which carries the

Borrelia bugdorferi bacteria, is the size

of a poppy seed in the nymph stage.

To avoid catching the disease, do a

body check after being in nature. This

should be done each day for at least

three days after being in nature.

Chronic Lyme disease develops when a person has been infected with the bacteria Borrelia burgdorferi, receives treatment, yet continues to have symptoms. The infection is most often spread through tick bites. It is also called "post Lyme disease" or "persistent Lyme disease."

 

Experts do not agree on the number of people who have the disease, what tests are more reliable and what treatment is best. However, most do agree that the disease is under reported and the number infected is growing all over the United States. 

 

Additionally, while “Lyme disease” refers to infection from the Borrelia bacteria, many people with Lyme disease will also have infections from other bacteria and parasites that are also carried by the same ticks. Grouped together, they are called “vector-borne infections.” Diagnosing these infections and treating them early may have a significant impact on whether a Lyme disease patient sees improvement.

Symptoms of chronic Lyme disease?

What if I have Chronic Lyme Disease?

Carol Fisch’s story

Economic impact of chronic Lyme disease

One Voice, One Community, One Cause

 

The information contained in these topics is not intended nor implied to be a substitute for professional medical advice, it is provided for educational purposes only. You assume full responsibility for how you choose to use this information. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment or discontinuing an existing treatment. Talk with your healthcare provider about any questions you may have regarding a medical condition. Nothing contained in these topics is intended to be used for medical diagnosis or treatment.


HEALTH CONDITIONS LIBRARY
ADVOCACY & AWARENESS
CDC PETITION
ABOUT THE NEI CENTER

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PANDORA is strong on advocacy and awareness to improve the quality of life of those with NEI diseases. This is being accomplished through multiple approaches:

• Educating the public about 

  NEIDs

• Educating physicians about

  the true nature of NEIDs

• Advocating for state and

  national governments to

  increase research into NEIDs

• Advocating for government

  health policies that will

  improve the quality of life of

  NEIDs patients. Read More >

Please sign

this petition

telling the CDC they need

to make changes to their CFS research program.

The CDC has already

made some progress by

meeting with patient organizations and working

with other ME/CFS

clinicians and researchers.

They have started the

process of refining the CFS diagnostic criteria.

But much more is needed.

They have a long way to go.

The (NeuroEndocrineImmune) NEI Center will be the first research center of its kind. Patients will benefit from cutting-edge research and clinical care. It will have the computer-aided disease diagnosis and treatment (CADDT) system, which will be specifically designed for multi-system illnesses and complex diseases.

Assistance in accessing social services will also be offered so that patients will feel better, live longer and have an improved quality of life. For more information, visit the NEI Center website.

 
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