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Gordon Broderick received a 2009 grant
for interns to help in his research
into ME/CFS and GWI.
The MCWPA project is an advertising
campaign to alert the public that
ME/CFS is having a big impact on
public health.In this campaign,
patients vote on the ad content.
PANDORA supported the Speak
Up About ME effort to bring attention
to children who have ME/CFS.
Research:
- 2009—PANDORA donated $2,000 through The Nancy Klimas Research Excellence Award that was given to Dr. Michael H. Antoni and Dr. John K. Chia, an infectious disease physician and researcher at UCLA.
- 2009—PANDORA awarded $3,000 to Gordon Broderick, PhD, a Canadian ME/CFS and Gulf War illness researcher. This money was for two interns to study the immune system abnormalities in Gulf War illness and neuro-imaging as possible use in diagnosing ME/CFS. This grant was given in memory of Dr. Steven Croft, who practiced rheumatology in Boca Raton in Florida.
- 2008—PANDORA awarded a $5,000 grant to the University of Miami for the Gulf War Illnesses and ME/CFS Clinical Research Center.
- 2008—PANDORA awarded a $2,000 grant to the IACFS/ME for a medical research scholarship in honor of Dr. Nancy Klimas.
- 2008—PANDORA awarded a $250 grant to DePaul University to support educational programs for chronically ill students.
Physician Education:
- 2008—PANDORA awarded a $1,100 grant to the Vermont CFIDS Association to be used for a medical student scholarship. This project is designed to get more young physicians interested in ME/CFS.
- 2008—PANDORA awarded a $1,500 grant to Fundacion para la Fibromialgia el Sindrome de Fatiga Cronical, of Barcelona, Spain, for the translation of a physician manual for the treatment of ME/CFS.
Public Awareness Programs:
- 2011—PANDORA awarded a $300 grant to Lace up for Lyme.
- 2010-2011—PANDORA awards grants to the ME/CFS Worldwide Patient Alliance (MCWPA) project for running advertisements to bring awareness to ME/CFS. Patient donations made through PANDORA are given to the project in the form of grants. From August 2010 to February 2011, PANDORA granted over $11,000 to this patient-driven, grassroots effort.
- 2010—PANDORA awarded a $5,000 grant to Lymenaide in the Paint May Lyme Green campaign to bring national attention to Lyme disease.
Advocacy Programs:
- 2011—PANDORA is now taking donations for the Speak Up About ME project that shows government officials the impact ME/CFS has on children.
- 2008—PANDORA awarded a grant of $1,000 to the National Fibromyalgia Association
- 2008—PANDORA awarded a $1,000 grant to the CFIDS Association to honor their CEO, Kim McCleary.
| HEALTH CONDITIONS LIBRARY | ADVOCACY & AWARENESS |
CDC PETITION |
ABOUT THE NEI CENTER |
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PANDORA is strong on advocacy and awareness to improve the quality of life of those with NEI diseases. This is being accomplished through multiple approaches: • Educating the public about NEIDs • Educating physicians about the true nature of NEIDs • Advocating for state and national governments to increase research into NEIDs • Advocating for government health policies that will improve the quality of life of NEIDs patients. Read More > |
telling the CDC they need to make changes to their CFS research program. The CDC has already made some progress by meeting with patient organizations and working with other ME/CFS clinicians and researchers. They have started the process of refining the CFS diagnostic criteria. But much more is needed. They have a long way to go. |
The (NeuroEndocrineImmune) NEI Center will be the first research center of its kind. Patients will benefit from cutting-edge research and clinical care. It will have the computer-aided disease diagnosis and treatment (CADDT) system, which will be specifically designed for multi-system illnesses and complex diseases. Assistance in accessing social services will also be offered so that patients will feel better, live longer and have an improved quality of life. For more information, visit the NEI Center website. |
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