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Learn more about leading NEIDs

advocates and recipients of PANDORA's

Fueling Advocacy Citgo Fuel Cards

 
What is Fibromyalgia?

Symptoms of fibromyalgia

What if I have fibromyalgia?

Brad Ellis’ story

Economic Impact of fibromyalgia

Fibromyalgia causes severe, debilitating pain.

 

Fibromyalgia is a disease with widespread pain and other symptoms. The word refers to pain in the muscles and fibrous tissue. Estimates are that 3-5% of women and .5% of men have fibromyalgia. Recent research shows that fibromyalgia patients have excessive substance P, a chemical that gives the “pain” signal in the brain.

 

Men, women and even children can get fibromyalgia. It is most common in women. It often develops after a surgery, injury or infection.

I assess the power of a will by how much resistence, pain, torture it endures and knows how to turn to its advantage. - Freidrich Nietzsche

One Voice, One Community, One CauseTM

 

     The information contained in these topics is not intended nor implied to be a substitute for professional medical advice, it is provided for educational purposes only. You assume full

     responsibility for how you choose to use this information. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment or

     discontinuing an existing treatment. Talk with your healthcare provider about any questions you may have regarding a medical condition. Nothing contained in these topics is

     intended to be used for medical diagnosis or treatment.


HEALTH CONDITIONS LIBRARY
ADVOCACY & AWARENESS
CDC PETITION
ABOUT THE NEI CENTER

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PANDORA is strong on advocacy and awareness to improve the quality of life of those with NEI diseases. This is being accomplished through multiple approaches:

• Educating the public about 

  NEIDs

• Educating physicians about

  the true nature of NEIDs

• Advocating for state and

  national governments to

  increase research into NEIDs

• Advocating for government

  health policies that will

  improve the quality of life of

  NEIDs patients. Read More >

Please sign

this petition

telling the CDC they need

to make changes to their CFS research program.

The CDC has already

made some progress by

meeting with patient organizations and working

with other ME/CFS

clinicians and researchers.

They have started the

process of refining the CFS diagnostic criteria.

But much more is needed.

They have a long way to go.

The (NeuroEndocrineImmune) NEI Center will be the first research center of its kind. Patients will benefit from cutting-edge research and clinical care. It will have the computer-aided disease diagnosis and treatment (CADDT) system, which will be specifically designed for multi-system illnesses and complex diseases.

Assistance in accessing social services will also be offered so that patients will feel better, live longer and have an improved quality of life. For more information, visit the NEI Center website.

 
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