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Take a look at what we have done:
Always remember that
the future comes one
day at a time. - Dean Acheson
You can make a difference by joining us in
these current advocacy and awareness efforts:
Support Pediatric Illness Awareness
- Speak Up About ME. PANDORA is supporting the Speak Up About ME effort that brings awareness to patients who got sick with ME/CFS as children or teenagers. We encourage you to do so also.
Sign a Petition
- Tell the CDC to change their CFS research program. While we have seen some recent changes, this government agency has a long way to go to catch up to the science.
- NEI CenterTM Facebook Petition. Forming an NEI CenterTM will require support from the patient community, a university, physicians and government agencies. Many of these elements are in place for the first NEI Center to be at the Florida International University in the Department of Molecular Microbiology and Infectious Disease. However, government support is still needed. Please tell government leaders you want them to do their part in creating an NEI CenterTM.
| HEALTH CONDITIONS LIBRARY | ADVOCACY & AWARENESS |
CDC PETITION |
ABOUT THE NEI CENTER |
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PANDORA is strong on advocacy and awareness to improve the quality of life of those with NEI diseases. This is being accomplished through multiple approaches: • Educating the public about NEIDs • Educating physicians about the true nature of NEIDs • Advocating for state and national governments to increase research into NEIDs • Advocating for government health policies that will improve the quality of life of NEIDs patients. Read More > |
telling the CDC they need to make changes to their CFS research program. The CDC has already made some progress by meeting with patient organizations and working with other ME/CFS clinicians and researchers. They have started the process of refining the CFS diagnostic criteria. But much more is needed. They have a long way to go. |
The (NeuroEndocrineImmune) NEI Center will be the first research center of its kind. Patients will benefit from cutting-edge research and clinical care. It will have the computer-aided disease diagnosis and treatment (CADDT) system, which will be specifically designed for multi-system illnesses and complex diseases. Assistance in accessing social services will also be offered so that patients will feel better, live longer and have an improved quality of life. For more information, visit the NEI Center website. |
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