 |
Loading
|
 |
    |
|
PANDORA is a non-profit organization formed in 2002 to provide patient resources locally in South Florida. Since those humble beginnings, PANDORA has grown to be an internationally-supported advocacy organization influencing government policy and improving patients' lives locally and nationally.
Largely grassroots in its activities, PANDORA draws on and empowers patients to create the change needed. Among other activities, PANDORA representatives travel to conferences, lobbies elected officials and testifies at the semi-annual Chronic Fatigue Advisory Committee meetings.
| HEALTH CONDITIONS LIBRARY | ADVOCACY & AWARENESS |
CDC PETITION |
ABOUT THE NEI CENTER |
|
|
PANDORA is strong on advocacy and awareness to improve the quality of life of those with NEI diseases. This is being accomplished through multiple approaches: • Educating the public about NEIDs • Educating physicians about the true nature of NEIDs • Advocating for state and national governments to increase research into NEIDs • Advocating for government health policies that will improve the quality of life of NEIDs patients. Read More > |
telling the CDC they need to make changes to their CFS research program. The CDC has already made some progress by meeting with patient organizations and working with other ME/CFS clinicians and researchers. They have started the process of refining the CFS diagnostic criteria. But much more is needed. They have a long way to go. |
The (NeuroEndocrineImmune) NEI Center will be the first research center of its kind. Patients will benefit from cutting-edge research and clinical care. It will have the computer-aided disease diagnosis and treatment (CADDT) system, which will be specifically designed for multi-system illnesses and complex diseases. Assistance in accessing social services will also be offered so that patients will feel better, live longer and have an improved quality of life. For more information, visit the NEI Center website. |
and provisions unless otherwise indicated. For futher information, please read the complete Copyright Notice and Privacy Statement available on this site.