 |
Loading
|
 |
    |
|
Eligibility requirements:
1. Must be receiving Social Security Income (SSI)
have household income that matches or is below
the 2011 Department of Health and Human
Services Poverty Guidelines amount.
2. Must be a U.S. resident.
3. Must have picture identification.
4. Must sign a release agreeing that your name
and picture (or likeness) may be used in future PANDORA promotional materials and with our
partners, at our discretion.
5. Must have a diagnosis of either ME/CFS, fibromyalgia, Gulf War illness, chemical
sensitivities / environmental illness or chronic
Lyme disease.
6. Recipients will be responsible for any taxes
or encumbrances that might result from this
giveaway.
While the rest of the world
has been improving
technology, Ghana has
been improving the
quality of man's humanity
to man. - Maya Angelou
Thanks to the votes received in the Citgo Fueling for Good contest, PANDORA won a $5,000 grant for gasoline purchases. Part of the grant from Citgo will go toward PANDORA’s operation expenses, including our volunteer programs.
However, we also saw an opportunity for these cards to go directly to improving patient quality of life, PANDORA’s main goal. This Fueling a Better Quality of Life Project is right in line with the holiday spirit that is already in the air. We believe in "paying forward." PANDORA will award $100 gas cards to 20 eligible patients.
By giving away these cards, we hope to alleviate the financial hardship patients often experience with the loss of good health. We know many patients, especially in rural areas, struggle to pay for gas to take care of their personal needs, including traveling to doctor appointments, physical rehabilitation, attending religious services during the holidays as well as attending year-round social and support groups. These types of activities often improve the quality of life for individuals stricken with a chronic, debilitating NeuroEndocrineImmune disease.
What to do:
Send an email to contact@pandoranet.info with your name, address, phone number and distance to your primary physician. Include the following as attachments to the email:
-
Document proof that you are currently receiving SSI benefits or that your household income is at or below the 2011 Department of Health and Human Services Poverty Guidelines amount.
-
Document proof of your NeuroEndocrineImmune disease (ME/CFS, FMS, GWI, chemical sensitivities / environmental illness or chronic Lyme disease) diagnosis
-
Scanned image of your picture identification, such as a driver’s license or state-issued identification.
If you cannot email to us the documents, you can also fax them to 954-783-6771 using the reference “Fueling a Better Quality of Life.” The deadline for submitting your application is February 28, 2012. PANDORA has sole discretion in selecting which 20 applicants receive fuel cards.
| HEALTH CONDITIONS LIBRARY | ADVOCACY & AWARENESS |
CDC PETITION |
ABOUT THE NEI CENTER |
|
|
PANDORA is strong on advocacy and awareness to improve the quality of life of those with NEI diseases. This is being accomplished through multiple approaches: • Educating the public about NEIDs • Educating physicians about the true nature of NEIDs • Advocating for state and national governments to increase research into NEIDs • Advocating for government health policies that will improve the quality of life of NEIDs patients. Read More > |
telling the CDC they need to make changes to their CFS research program. The CDC has already made some progress by meeting with patient organizations and working with other ME/CFS clinicians and researchers. They have started the process of refining the CFS diagnostic criteria. But much more is needed. They have a long way to go. |
The (NeuroEndocrineImmune) NEI Center will be the first research center of its kind. Patients will benefit from cutting-edge research and clinical care. It will have the computer-aided disease diagnosis and treatment (CADDT) system, which will be specifically designed for multi-system illnesses and complex diseases. Assistance in accessing social services will also be offered so that patients will feel better, live longer and have an improved quality of life. For more information, visit the NEI Center website. |
and provisions unless otherwise indicated. For futher information, please read the complete Copyright Notice and Privacy Statement available on this site.