 |
Loading
|
 |
    |
|
NeuroEndocrineImmune diseases (NEIDs) take a dramatic toll on society, individuals and their families. Many patients cannot find knowledgeable healthcare, face obstacles in accessing social services and do not have the physical and emotional strength to be their own advocates. An estimated 20 million Americans suffer from NEIDs.
The good news is that NEIDs are now recognized as deserving state and national attention. More good news is that scientific breakthroughs in recent years have
brought greater understanding of the biological abnormalities that may explain the
debilitating symptoms associated with NEIDs. Even better, PANDORA and other
patient organizations are now working together to advocate for physician
education, increased government-funded research and government policies that
make advancement in improving these patients' quality of life.
One Voice, One Community, One Cause™
ADVOCACY & AWARENESS |
CDC PETITION |
ABOUT THE NEI CENTER |
PANDORA is strong on advocacy and awareness to improve the quality of life of those with NeuroEndocrineImmune diseases. This is being accomplished through multiple approaches: • Educating the public about NEIDs • Educating physicians about the true nature of NEIDs • Advocating for state and national governments to increase research into NEIDs • Advocating for government health policies that will improve the quality of life of NEIDs patients. |
telling the CDC they need to make changes to their CFS research program. The CDC has already made some progress by meeting with patient organizations and working with other ME/CFS clinicians and researchers. They have started the process of refining the CFS diagnostic criteria. But much more is needed. |
The (NeuroEndocrineImmune) NEI Center will be the first research center of its kind. Patients will benefit from cutting-edge research and expert clinical care. It will have the computer-aided disease diagnosis and treatment (CADDT) system that will be specifically designed for multi-system illnesses and complex diseases. Assistance in accessing social services will also be offered so that patients will feel better, live longer and have an improved quality of life. For more information, visit the NEI Center website |
© 2010 Pandora, Inc. All text, graphics, video, and audio files is owned or licensed to Pandora, Inc. and is protected by International copyright laws
and provisions unless otherwise indicated. For futher information, please read the complete Copyright Notice and Privacy Statement available on this site.